For families

Interested in participating?

If you or your family member have a diagnosis of SB, we welcome you to join our study!

Participant requirements

  • The subject and both biological parents are willing and able to send a saliva sample by mail
  • The subject has a diagnosis of myelomeningocele and hydrocephalus (usually with shunt placement)
  • The subject can be any age. We have special saliva kits for young children and those who have difficulty spitting.

Simple and confidential

Our study is easy—completed through the mail—and your personal information will be kept confidential. Once we receive your samples, we extract DNA from the saliva and analyze its contents,   in search of the genetic causes of spina bifida.

For more information, contact us.

To enroll, sign up here.